Ask CancerCare

This is a common concern of family and friends. There are several factors that can lead to this sudden change in relationships and personality. For patients, it often starts when they hear the words, “you have cancer.” Most of us know someone who has had cancer so hearing the words “you have cancer” brings up fear and uncertainty. A newly diagnosed patient begins to recall watching others go through it and before they have a lot of information they start to worry that the same experience is going to happen to them; especially if those they knew had difficulties.

Because a cancer diagnosis requires undergoing a lot of tests, managing an often complicated health care system, and coping with increasing financial concerns, many patients become overwhelmed and shut down emotionally to focus on the practical issues they need to address immediately. During the very time that family and friends want to help most, the patient might seem distant and pull away.

Once he or she starts treatment additional changes can happen. Some might be permanent, raising concerns about the patient’s ability to be the same partner and provider they once were. At some point though, the emotions finally come to the surface and people begin to look at what they have been going through. That is often the time they reach out to a counselor, clergy or open up with loved ones.

During all of this, family and friends are anxious themselves and try harder to help the patient, which might just push him or her further away. This adds to the confusion during a very stressful time and can escalate the distance. Since cancer also affects those who care about the patient, this is instead a good time to step back; let them know you are there but also get support for yourself. Literature and support groups for caregivers go a long way toward normalizing your experience, providing education on cancer and its side effects, and can offer new insights.

Time and time again I am reminded that cancer is a process of learning, changing, confronting and reintegrating. It’s a process for both patients and caregivers. Sometimes it feels like a roller coaster and other times like an endless journey. Relaxation exercises can help with the stress. And sometimes stepping back a bit can eventually bring caregivers and patients closer together.

Here are resources I think can be helpful to you:

• Caring Advice for Caregivers: How Can You Help Yourself?
• Managing Emotions
• Caregiver Support